The purpose of this session is to better help governments and policy makers at the national level know which stage their countries are at in the development of a genomic health data ecosystem; whether their strategies for implementing precision health approaches are successful and how they can improve on their approaches. This project will build on the Health Data Ecosystem survey that was developed as part of the All for One Precision Health Initiative as presented at the National Initiatives Forum (NIF) at the GA4GH meeting in Melbourne Australia (Recording I Slides I Notes) and under review for publication, led by Jordan Lerner-Ellis. It will aim to incorporate the maturity level model developed by the Beyond 1 Million Genomes Project (B1MG) in Europe, led by Astrid Vincente, and which involved Adrian Thorogood on ethical and legal maturity indicators.
Merkin Building
Cambridge, MA 02142
United States