Name
Informing clinical data sharing standards
Date & Time
Friday, April 4, 2025, 9:00 AM - 10:30 AM
Description

In the context of clinical practice, sharing patient-level genetic information is crucial to advancing the quality of care, as it can inform variant classification, define phenotype spectrum and improve treatment efficacy. Clinical institutions have established policies around the sharing of data, however, uncertainty remains as to when institutions can share data without consent and with whom. This session brings the GA4GH community together, to:

  • discuss findings from a review of institutional policies;
  • assess the view points of the community on these policies;
  • brainstorm the development of a set of standards that inform institutional practices.
Location Name
Monadnock
Full Address
Broad Institute of MIT and Harvard
Merkin Building
Cambridge, MA 02142
United States
Agenda