Full Name
Adrian Thorogood
Job title
R&D Specialist (Law and Ethics)
University/company
University of Luxembourg
Speaker bio
Adrian Thorogood (B.A.&Sc., B.C.L.&LL.B., LL.M.) is a lawyer and legal researcher who serves as the Data Governance Manager for the Terry Fox Research Institute in Canada. His research focuses on how genomic sequencing platforms, information and networking technologies, open science practices, and patient empowerment movements are disrupting research and health care (https://orcid.org/0000-0001-5078-8164). Adrian has assisted numerous cross-border data sharing initiatives with ethical and legal issues, including the EU 1+ Million Genomes Initiative. Previously, Adrian has held senior researcher positions at the Luxembourg Centre for Systems Biomedicine at the University of Luxembourg, and the Centre of Genomics and Policy at McGill University in Canada. He was also the Regulatory and Ethics Manager of the Global Alliance for Genomics and Health (GA4GH), where he supported the development of frameworks to support international data sharing, addressing issues of consent, data privacy and security, and intellectual property. Adrian completed his Master of Laws at the University of Toronto in Canada. His thesis proposed ways to overcome incompatibilities between legal systems that hinder international health research. He also holds a joint common law / civil law degree from McGill University.
Adrian Thorogood