Name
Patient Story: Serene
Description
Serene Poh shares her family’s decade-long journey to finding a diagnosis for her son, Jayden, who was ultimately diagnosed with PURA syndrome through genomic testing. She reflects on how that diagnosis brought clarity, connection to a global community, and a new perspective on their family’s journey.
Date
Wednesday, September 30, 2026
Time
9:10 AM - 9:20 AM (SGT)