Poster Number
14
Poster Title
Consent requirements for secondary use of genomic data in line with EU law and the laws and practices of different European countries: convergences and divergences
Authors
Mariann Karcza (Luxembourg National Data Service), Jochen Scneider (Medical Translational Research group,LCSB of Luxembourg University)
Abstract
Legal analysis on how the European genomics initiatives could lawfully transfer their data to the proposed European Genomic Data Infrastructure consortium; analysis on how the European Health Data Space (EHDS) Regulation could affect genomic and related health data collections stored by research organizations participating in European genomic initiatives;
Consent requirements for secondary use of genomic data in compliance with the GDPR regarding European genomic research projects;
Other relevant ethical requirements, such as secrecy of health care professionals and information to individuals, whose genome processed for secondary use, scientific research purposes;
Other conditions, especially focusing on citizens' engagements and information to citizens on the research results.
Consent requirements for secondary use of genomic data in compliance with the GDPR regarding European genomic research projects;
Other relevant ethical requirements, such as secrecy of health care professionals and information to individuals, whose genome processed for secondary use, scientific research purposes;
Other conditions, especially focusing on citizens' engagements and information to citizens on the research results.
Digital Poster