6th International Workshop on ​Genome Privacy and Security (GenoPri'19)

October 21 & 22  |  Room 310

DAY 1 AGENDA: Monday, October 21
Session Title
12:30 - 13:00
13:00 - 13:20
Welcome & Opening Remarks
13:20 - 14:20
  • Bonnie Berger, Massachusetts Institute of Technology (USA)
14:20 - 15:05
Presentation Session 1: "People" Session
Chair: Madeleine Murtagh
Genetic Discrimination and Privacy in the Big Data Era
  • Calvin Wl Ho, National University of Singapore (Singapore)
Learning from experiments in citizen involvement in health research data governance
  • Richard Milne, Society and Ethics Research, Wellcome Genome Campus (UK)
Is perception reality when it comes to genetic privacy online?
  • Andelka Phillips, University of Waikato (New Zealand)
  • Jan Charbonneau, University of Tasmania (Australia)
15:05 - 15:35
15:35 - 16:20
Presentation Session 2: "Regulation"
Session Chair: Mavis Machirori
GDPR consent requirements and other legal bases for processing
  • Irith Kist, Netherlands Cancer Institute in Amsterdam (the Netherlands)
Global Privacy Laws and Genetics Laboratories: A Practical Approach to Compliance
  • Michael Hamilton, Invitae Corporation (USA)
  • Jiayan Chen, McDermott Will & Emery LLP (USA)
A Conversation with US Senate leaders on Genomic Privacy
  • Rosalyn Ryan
16:20 - 17:00
Invited Plenary Talk
  • Ted Dove, Edinburgh University (UK)
DAY 2 AGENDA: Tuesday, October 22
Session Title
08:30 - 09:30
Researcher Identities & Access Claims:
towards a standard for automated data access
  • David Bernick, Broad Institute (USA)
  • Stephanie Dyke, McGill University (Canada)
  • Jonathan Lawson, Broad Institute (USA)
  • Craig Voisin, Google Inc. (Canada)
09:30 - 10:15
Presentation Session 3: "Models"
Session Chair: Xiaoqian Jiang
Enhancing open data sharing for functional genomics experiments:
Measures to quantify genomic information leakage & identify file formats for privacy preservation
  • Mark Gerstein, Yale University (USA)
Zero Knowledge Proofs for Accurate, Privacy-Preserving, Fraud Free Genomic Databases
  • Adriaan Larmuseau, Philips Research, Shanghai (China)
  • Alex Mankovich, Philips Research, Massachusetts (USA)
  • Yee Him Cheung, Philips Research, Massachusetts (USA)
  • Mike Qu, Philips Research, Shanghai (China)
Privacy-Preserving Processing of DNA reads based on Filtering
  • Maria Fernandes, University of Luxembourg (Luxembourg)
  • Jérémie Decouchant, University of Luxembourg (Luxembourg)
  • Marcus Völp, University of Luxembourg (Luxembourg)
  • Francisco M Couto, Universidade de Lisboa (Portugal)
  • Paulo Esteves-Verissimo, Universidade de Lisboa (Portugal)
10:15 - 10:45
10:45 - 11:30
Presentation Session 4: "Tools"
Session Chair: Jean-Louis Raisaro
Secure Data Sharing Network for Clinical Somatic Variant Insights
  • Christine Bakan, Roche Sequencing Solutions (USA)
xACS: Management of privacy in genomic and medical information
  • Jaime Delgado, Silvia Llorente
  • Daniel Naro, Universitat Politècnica de Catalunya (UPC), Barcelona (Spain)
DAISY: a tool for accountability of processing sensitive data in research
under the European General Data Protection Regulation (GDPR)
  • Regina Becker, Université du Luxembourg (Luxembourg)
  • Pinar Alper, Université du Luxembourg (Luxembourg)
  • Valentin Groues, Université du Luxembourg (Luxembourg)
  • Sandrine Munoz, Université du Luxembourg (Luxembourg)
  • Yohan Jarosz, Université du Luxembourg (Luxembourg)
  • Jacek Lebioda, Université du Luxembourg (Luxembourg)
  • Kavita Rege, Université du Luxembourg (Luxembourg)
  • Christophe Trefois, Université du Luxembourg (Luxembourg)
  • Venkata Pardhasaradhi Satagopam, Université du Luxembourg (Luxembourg)
  • Reinhard Schneider, Université du Luxembourg (Luxembourg)
MedCo: Privacy-Preserving Cohort Exploration and Analysis
  • David Froelicher, École Polytechnique Fédérale de Lausanne (EPFL)
  • Mickaël Misbach, École Polytechnique Fédérale de Lausanne (EPFL) 
  • Juan Ramón Troncoso-Pastoriza, École Polytechnique Fédérale de Lausanne (EPFL) 
  • Jean Louis Raisaro, Lausanne University Hospital (CHUV), Switzerland 
  • Jean-Pierre Hubaux, École Polytechnique Fédérale de Lausanne (EPFL)
11:30 - 12:10
Invited Plenary Talk and Rapporteur feedback on Day 1
  • Mwenza Blell, Newcastle University, (UK)
12:10 - 12:25
Event Feedback
12:25 - 12:30
Wrap up and Close